Musiculair is a charity project for the benefit of neuromuscular disorders. A friend of mine, Charlotte, is part of the organization of this project and she’s doing it with her whole heart!
Charlotte and two other students of the LUCA School of Arts in Leuven took the initiative in october 2014. Together with the hospital UZ Gasthuisberg Leuven they decided to focus on amyotrophic lateral sclerosis (ALS) and Duchenne muscular dystrophy (Duchenne). More specifically they support the ALS Liga and the Rondoufonds.
Here is some info about both disorders:
ALS causes muscle weakness and atrophy throughout the body due to the degeneration of motor neurons. Most people eventually are not able to walk or use their hands and arms. They also lose the ability to speak and swallow food. Most people with ALS die from respiratory failure, usually within three to five years from the onset of symptoms.
Duchenne is a disease that only affects boys. The main symptom is muscle weakness within the muscles of the hips, pelvic area, thighs, shoulders, and calves being first affected. Muscle weakness also occurs later, in the arms, neck, and other areas. They often have an awkward manner of walking, fall a lot and have difficulties with motor skills.
So both disorders are severe and have a huge impact on patients’ lives and their surroundings.
Musiculair’s main event is a charity concert with a performance by the EQ! Euphoniumquartet, followed by an harmonic ensemble, a string ensemble and a choral. Besides this charity concert, Musiculair is also a pedagogical project for kids with neuromuscular disorders under the form of interactive lessons and workshops. Free yoga lessons, with a free contribution in favor of Musiculair, are also part of this charity project.
The charity concert takes place on the 19th of september 2015 at 7.30 pm. The location is Lemmensinstituut in Leuven (Lemmensberg 3, 3000 Leuven).
Tickets are available through ticketwinkel.be. You have the posibility to choose between 4 categories of tickets:
♪ VIP € 50 + Musiculinair
♪ Rang 1 € 25
♪ Rang 2 €20
♪ Rang 3 € 15
A reception takes place after the concert (separately for VIP).
If you can’t make it to the concert, there is also the possibility to support Musiculair through support cards (€5) for which you can consult their Facebookpage (here!) or contact them at email@example.com. New sponsors are always welcome too ;-)
You can get more information through these channels and their website www.musiculair.be.
If you are not able to support this wonderful project financially, you may always share this blogpost, their Facebookpage, website, etc.
Through this blogpost I want to support Musiculair and help them reach and sensitize more people!
Lots of love,